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New Parent to Parent
Service
Parent Volunteers,
parents with children who have Colitis or Crohn’s Disease,
have been trained to talk with other parents in a similar
situation. A telephone appointment can be made through the
Information Service 0845 130 2233 to talk to a Parent
Volunteer. Any parent with a child who is still at school or
still under paediatric care can use this service. |
NACC offers a wide range of services for people with
IBD including an information service over the telephone, a confidential
listening service called NACC-in-Contact, Personal Grants to help those
on a low income that have a specific need arising from their IBD,
Guidance on claiming Disability Living Allowance, Counsellors trained by
NACC to help people with IBD and a support network for children with IBD
and their parents. NACC also provides a wide range of
publications by way of books, booklets, information sheets and fact
sheets. and information on other potentially helpful UK organisations
and contact information for IBD organisations in other countries.
Services:
 Information Service
NACC-in-Contact
Personal Grants
Disability Benefits (including Disability Living Allowance)
Counselling
Children
and Parents
Publications:
Information
Sheets and FAQs
NACC
News
-
A copy of the national newsletter, NACC News, is sent every quarter to
each member. It provides a forum for members to exchange ideas,
practical suggestions and personal experiences. It also gives medical
and practical information based on individual problems that members have
experienced. There are regular features on new developments in
treatments and other services relevant to people living with IBD.
Contributions for the newsletters - articles, letters, photographs, news
- are always welcome. Please send them to the
Booklets
-
Every member receives a pack of information when they join, which
provides accurate medical information expressed in lay terms. The
information includes booklets on:
 Ulcerative
Colitis or Crohn's Disease (as appropriate)
Living
with IBD
Food
and IBD
Other
booklets available on request:
- Drugs
used in IBD, Investigations for IBD, Surgery for Crohn’s Disease
-
Surgery for Ulcerative Colitis
Two
booklets ("Living with IBD" and "Understanding Colitis and Crohn's
Disease") written for newly-diagnosed patients and their families are
now available to download in English, Gujarati, Hindi, Punjabi and Urdu
in pdf format,
click here for details or
here for these
booklets in Welsh.
Click
here for a list of NACC Publications
Other Useful Information:
Books
you can buy
Helpful
and potentially related UK organisations
IBD
Organisations in other countries
Keys
for disabled toilets |
Quick Links on this page:
Previous page
Benefits
Bookshop
Children and Parents
Counselling
Download NACC Booklets
Information Service
Information Sheets, FAQs and Drug Treatment Information
NACC-in-Contact
Personal Grants Fund
Welsh NACC Booklets
Link to RADAR
List of NACC Publications
Other UK Organisations
Worldwide IBD Organisations
Charity registered in England Number 1117148
Charity registered in
Scotland Number SC038632
A company limited by guarantee in England:
company number 5973370
Disclaimer
Problems downloading
from this site?
To access many of the downloads on this website you will need Adobe Acrobat Reader. This can be obtained free by clicking
here or by clicking this image:
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